RA: How It {Affects|Impacts} Your Body and Life – WebMD

11 December 2020

When you’re {diagnosed|identified|detected} with rheumatoid arthritis(RA ), you and your {doctor|physician|medical professional} {might|may} {talk about|discuss|speak about} {symptoms|signs} like joint {pain|discomfort} and medications to {manage|handle} your {disease|illness}. {{But|However} RA, an autoimmune {disease|illness}|RA, an autoimmune {disease|illness}} that {causes|triggers} {inflammation|swelling}, can {affect|impact} your body and {lifestyle|way of life} in {unexpected|unforeseen|unanticipated} {ways|methods} and your {doctor|physician|medical professional} {might|may} not {mention|discuss} them. {Sometimes|In some cases|Often} you {have to|need to} {learn|discover|find out} how RA will {affect|impact} you and your life by {trial and error|experimentation}.

All-Over {Symptoms|Manifestations}

“Your mind {might|may} be {willing to|ready to|happy to|going to} do {a project|a job|a task}, {but|however} your body {might|may} not be,” {says|states} Dawn Smith-Popielski of St. Louis, MO. “{Even though|Although|Despite The Fact That} my RA is {usually|typically|normally|generally} {pretty|quite} well {controlled|managed}, there are days when I{‘ve| have actually} {planned|prepared} {a project|a job|a task} for the {yard|lawn|backyard} or around {the house|your home|your house} that {ends up|winds up} taking {twice|two times} as long. {Living on|Surviving on|Residing on} RA time {sometimes|in some cases|often} {means|implies|indicates|suggests} making {modifications|adjustments}.”

Carolyn Amisano was {diagnosed|identified|detected} with RA in her early 30s with {two|2} {young children|children|kids|young kids}. She {expected|anticipated} {pain|discomfort}, {but|however} not {extreme|severe} {fatigue|tiredness} or {emotional|psychological} ups and downs.

“You {don’t|do not} {realize|recognize|understand} how RA {affects|impacts} {everything|whatever}: getting in and out of your {car|vehicle|automobile|cars and truck}, getting dressed, making a bottle for your {baby|infant|child}. I {remember|keep in mind} {just|simply} {sitting on|resting on} my {couch|sofa} and thinking, ‘I {may|might} not {be able to|have the ability to} do this,'” she {says|states}.

Amisano, who {lives in|resides in} Suwanee, GA, {found|discovered} it {extremely|incredibly|very|exceptionally} {painful|unpleasant|uncomfortable|agonizing} {just|simply} to button her blouse or grip her {toothbrush|tooth brush}. “{Mornings|Early mornings} are {hard|difficult|tough} with RA. When I was {invited|welcomed} to school {meetings|conferences} for my {children|kids}, I {had to|needed to} {say|state} no {and that|which} I {could|might} {only|just} {deal with|handle} things {later|later on} in the day.”

{Managing|Handling} {Meds|Medications}

{Over the years|Throughout the years|For many years}, Amisano’s RA medications {have|have actually} {included|consisted of} gold salts, prednisone, methotrexate, and {newer|more recent} biologics like adalimumab (Humira) and infliximab (Remicade). Each {new|brand-new} drug {came with|included|featured} {{new|brand-new} {instructions|directions|guidelines} and {side effects|adverse effects|negative effects}|side {effects|impacts|results} and {new|brand-new} {instructions|directions|guidelines}}.

That’s {challenging|difficult|tough} {because|since|due to the fact that} biologics for RA are {usually|typically|normally|generally} mail-ordered through a {specialty|specialized} {pharmacy|drug store}, not filled at your corner {drugstore|pharmacy}, {says|states} Cheryl Crow, who’s had RA for 18 years and {treats|deals with} RA {patients|clients} as {an occupational therapist|a physical therapist} (OT) in Seattle.

Some medications {require|need} you to get an infusion, which {requires|needs} an in-person {visit|check out|see} to {a clinic|a center} or {hospital|medical facility|healthcare facility|health center}. Others {require|need} you to {give|provide|offer} yourself {a shot at|a chance at} {home|house} and {may|might} {need|require} to be temperature-controlled in your {refrigerator|fridge}. These {special|unique} {needs|requirements} can be {challenging|difficult|tough}.

Smith-Popielski brings freezer packs on {trips|journeys} to keep her Humira injection pens cold. {She was {once|when|as soon as} on {a trip|a journey} when a snowstorm grounded all flights {home|house}.|When a snowstorm grounded all flights {home|house}, she was {once|when|as soon as} on {a trip|a journey}.} “I didn’t have {enough|sufficient|adequate} {medicine|medication} with me and {missed|missed out on} injecting it on my designated day. Now, I {always|constantly} {pack|load} {an extra|an additional} pen in case of {delays|hold-ups} and a week’s worth of other medications.”

Continued

{Doctor|Physician|Medical professional}’s {Visits|Gos to|Check outs|Sees} and {Insurance|Insurance coverage}

{Once|When|As soon as} you’re {diagnosed|identified|detected} with RA, you {may|might} {need|require} to see your rheumatologist every 3 months for {exams|examinations|tests} and bloodwork {at first|initially|in the beginning}, or schedule drug infusions every {few|couple of} weeks, Crow {says|states}. “This can be {a steep|a high} {learning|knowing} curve for {people|individuals} who {previously|formerly} considered themselves healthy and {only|just} {had to|needed to} {visit|go to|check out} the {doctor|physician|medical professional} {once|when|as soon as} a year for a physical.”

It’s {often|frequently|typically} {up to|as much as|approximately} you to {find out|discover|learn} if your {insurance|insurance coverage} {company|business} will cover your {new|brand-new} prescription without {requiring|needing} you to {try out|try|check out|experiment with} {cheaper|less expensive|more affordable} {medicines|medications} {first|initially}, she {says|states}. “{Many people|Lots of people|Many individuals} {are surprised|marvel} how {hard|difficult|tough} it is to {navigate|browse} the logistical side of care and {learn|discover|find out} {a whole|an entire} {new|brand-new} language of {insurance|insurance coverage} copays, coinsurance, {special|unique} policies for their medications, or medical terms like flare.”

{Come to|Concern|Pertain to} each {visit|go to|check out|see} with {questions|concerns} for your rheumatologist about your {disease|illness} course and any {new|brand-new} treatment {options|choices|alternatives}, Amisano {says|states}. “{Find out|Discover|Learn} what you {should|ought to|must|need to} {expect from|anticipate from|get out of} any {new|brand-new} medication. My {doctor|physician|medical professional} was {always|constantly} {good at|proficient at} {explaining|discussing|describing} how every {new|brand-new} drug worked. {Read|Check out} {everything|whatever} you can, so you can ask her, ‘Is this {normal|typical|regular}?’ {Don’t|Do not} {be afraid|hesitate} of the {unknown|unidentified}.”

{Expect|Anticipate} the {Unexpected|Unforeseen|Unanticipated}

After years of {living with|dealing with|coping with} RA, you’ll {find|discover} that it {doesn’t|does not} {just|simply} {affect|impact} your joints, {but|however} it can put you at {risk|danger|threat} for other autoimmune {diseases|illness}, {says|states} Smith-Popielski. She was {later|later on} {diagnosed|identified|detected} with Sjögren’s syndrome, which {causes|triggers} eye {inflammation|swelling} and dryness.

“If your rheumatologist hasn’t {recommended|suggested|advised} that you get {a checkup|an examination} with an {ophthalmologist|eye doctor}, do it,” she {says|states}.

{People|Individuals} with RA are at {higher|greater} {risk|danger|threat} to {develop|establish} {depression|anxiety} or {anxiety|stress and anxiety} {{as well|also|too}, and {uncertainty|unpredictability} is {a constant|a continuous|a consistent}, {says|states} Crow.

| And {uncertainty|unpredictability} is {a constant|a continuous|a consistent}, {says|states} Crow.

}”It’s been {a {painful|unpleasant|uncomfortable|agonizing} {but|however} {beautiful|gorgeous|stunning|lovely} |a {beautiful|gorgeous|stunning|lovely} {but|however} {painful|unpleasant|uncomfortable|agonizing}} {process|procedure} for me to {learn|discover|find out} how to {embrace|accept|welcome} what’s {happening|occurring|taking place} in {the present|today} {moment|minute}, even if that {includes|consists of} {discomfort|pain} and {pain|discomfort}, and to {learn|discover|find out} that I can still live {a meaningful|a significant}, {full|complete} life. {Acceptance|Approval} {doesn’t|does not} {mean|imply|indicate|suggest} resignation or {giving up|quiting} hope. I still {hope for|expect|wish for} {a better|a much better} future, while I accept that {the present|today} {moment|minute} is what it is.”

After having RA for more than {30 years|thirty years} and getting {multiple|several|numerous} joint replacement {surgeries|surgical treatments}, Amye Leong {survived|made it through|endured} {an unprecedented|an unmatched|an extraordinary} crisis: her {family|household}’s {home|house} in Santa Barbara, CA, was {destroyed|ruined|damaged} in a mudslide in 2018. They {ran from|ranged from} {the house|your home|your house} with {nothing|absolutely nothing} {but|however} the {clothes|clothing} they were {wearing|using}.

Continued

“My {stress|tension} level went off the charts. My {blood pressure|high blood pressure} {went up|increased}, and I {had|had actually} {never|never ever} had that {problem|issue} {before|prior to}. It turned my RA into {a disease|an illness} I didn’t {recognize|acknowledge}, flaring in joints where I ‘d {never|never ever} had it {before|previously|in the past}, {including|consisting of} TMJ [temporomandibular joint {disorder|condition}] on both sides of my jaw,” {says|states} Leong, {founder|creator} and CEO of Healthy {Motivation|Inspiration}, a health consulting and {patient|client} advocacy {firm|company}.

She {began|started} practicing meditation and yoga daily, {often|frequently|typically} with her {husband|hubby|spouse|other half|partner}. These mind-body practices {help|assist} her {relax|unwind}, {stay|remain} {centered|focused}, and {cope with|deal with|handle|manage} her RA. “You {have to|need to} {at least|a minimum of} {try|attempt} something. After a week of doing yoga, ask yourself if you feel {a difference|a distinction}. I did.”

Hacks to Make Life Easier

These hacks can make {daily|everyday|day-to-day} {tasks|jobs} {easier|simpler|much easier} and gentler on your joints:

{Use|Usage} jar-opening {aids|help}. “I have a multi-sized one I {use|utilize} {often|frequently|typically} in my {kitchen|kitchen area|cooking area}. {{Also|Likewise}, I have a foam built-up {handle|deal with|manage} to {widen|broaden|expand} the grip on {small|little} {items|products} like pens and {eyeliner|eye liner} pencils,” Crow {says|states}.|I have a foam built-up {handle|deal with|manage} to {widen|broaden|expand} the grip on {small|little} {items|products} like pens and {eyeliner|eye liner} pencils,” Crow {says|states}.} {Use|Usage} wide-handled {kitchen|kitchen area|cooking area} {gadgets|devices|gizmos} for {easier|simpler|much easier} {gripping and lever-style|lever-style and gripping} door {{handles|deals with|manages} versus knobs|knobs versus {handles|deals with|manages}}.

{Document|File} your {current|present|existing} prescriptions in your {smartphone|mobile phone|smart device} when you {travel|take a trip}, {says|states} {frequent|regular} flier Smith-Popielski. “{Travel bags|Luggage} with wheels and {comfortable|comfy} {handles|deals with|manages} are {essential|important|vital|necessary} for {traveling|taking a trip}. {Always|Constantly} have {outfits|attires|clothing} for your bad joint days: {clothes|clothing}, bras, or shoes that are {easy|simple} to get in and out of,” she {says|states}. “{Use|Utilize} health apps to {manage|handle} {doctor|physician|medical professional}’s {{visits|gos to|check outs|sees} and medications|medications and {visits|gos to|check outs|sees}}. It’s {easier|simpler|much easier} to {keep track of|monitor|keep an eye on|track} {appointments|visits|consultations}, refills, and test {results|outcomes}, and {requesting|asking for} refills is faster than calling the {doctor|physician|medical professional}’s {office|workplace} and playing phone tag.”

{Regular|Routine} {exercise|workout} will {help|assist} you feel and {function|work|operate} {better|much better} with RA. “It {could|might} be gardening or {taking a walk|walking}, {but|however} do something to get your heart rate up every day. {Invest in|Purchase|Buy} {a good|a great|an excellent} {pair|set} of walking shoes and {walk|stroll}!”

If RA {symptoms|signs} make it too {painful|unpleasant|uncomfortable|agonizing} to do the {hobbies|pastimes} you {love|like|enjoy}, such as sewing or {golfing|playing golf}, {tell|inform} your rheumatologist, Crow {says|states}. They can refer you to a therapist to {help|assist} you {adapt|adjust} {tasks|jobs} or {movements|motions} so you can do them with less {pain|discomfort} and {strain|stress|pressure}. “{Don’t|Do not} {afraid|scared} to be {really|truly|actually} {specific|particular} about your {goals|objectives} for your {unique|distinct|special} life.”

Sources

SOURCES:

Carolyn Amisano, Suwanee, GA.

. Dawn Smith-Popielski, St. Louis, MO.

. Cheryl Crow, {occupational therapist|physical therapist}, Seattle.

Amye Leong, Santa Barbara, CA.

American College of Rheumatology: “Rheumatoid Arthritis,” “Sjögren’s Syndrome.”

© 2020 WebMD, LLC. All rights {reserved|scheduled|booked}.

Source: webmd.com

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